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<title xml:lang="en">‘A Thing Full of Stories’: Traditional healers’ explanations of epilepsy and perspectives on collaboration with biomedical health care in Cape Town</title>
<author>
<name sortKey="Keikelame, Mpoe Johannah" sort="Keikelame, Mpoe Johannah" uniqKey="Keikelame M" first="Mpoe Johannah" last="Keikelame">Mpoe Johannah Keikelame</name>
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<author>
<name sortKey="Swartz, Leslie" sort="Swartz, Leslie" uniqKey="Swartz L" first="Leslie" last="Swartz">Leslie Swartz</name>
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<idno type="pmid">25680366</idno>
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<date when="2015">2015</date>
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<title xml:lang="en" level="a" type="main">‘A Thing Full of Stories’: Traditional healers’ explanations of epilepsy and perspectives on collaboration with biomedical health care in Cape Town</title>
<author>
<name sortKey="Keikelame, Mpoe Johannah" sort="Keikelame, Mpoe Johannah" uniqKey="Keikelame M" first="Mpoe Johannah" last="Keikelame">Mpoe Johannah Keikelame</name>
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<author>
<name sortKey="Swartz, Leslie" sort="Swartz, Leslie" uniqKey="Swartz L" first="Leslie" last="Swartz">Leslie Swartz</name>
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<title level="j">Transcultural psychiatry</title>
<idno type="ISSN">1363-4615</idno>
<idno type="eISSN">1461-7471</idno>
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<date when="2015">2015</date>
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<p id="P1">The experience of epilepsy is profoundly culturally mediated and the meanings attributed to the condition can have a great impact on its social course. This qualitative study used Kleinman’s Explanatory Model framework to explore traditional healers’ perspectives on epilepsy in an urban township in Cape Town, South Africa. The healers who participated in the study were Xhosa-speaking, had experience caring for patients with epilepsy, and had not received any training on epilepsy. Six individual in-depth interviews and one focus group with nine traditional healers were conducted using a semi-structured interview guide. Traditional healers identified several different names referring to epilepsy. They explained epilepsy as a thing inside the body which is recognized by the way it presents itself during an epileptic seizure. According to these healers, epilepsy is difficult to understand because it is not easily detectable. Their biomedical explanations of the cause of epilepsy included, among others, lack of immunizations, child asphyxia, heredity, traumatic birth injuries and dehydration. These healers believed that epilepsy could be caused by
<italic>amafufunyana</italic>
(evil spirits) and that biomedical doctors could not treat the supernatural causes of epilepsy. However, the healers believed that western medicines, as well as traditional medicines, could be effective in treating the epileptic seizures. Traditional healers were supportive of collaboration with western-trained practitioners and highlighted that the strategy must have formal agreements in view of protection of intellectual property, accountability and respect of their indigenous knowledge. The findings suggest a need for interventions that promote cultural literacy among mental health practitioners. Research is urgently needed to assess the impact of such collaborations between biomedical services and traditional healers on epilepsy treatment and care.</p>
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<journal-id journal-id-type="nlm-journal-id">9708119</journal-id>
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<journal-id journal-id-type="nlm-ta">Transcult Psychiatry</journal-id>
<journal-id journal-id-type="iso-abbrev">Transcult Psychiatry</journal-id>
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<journal-title>Transcultural psychiatry</journal-title>
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<issn pub-type="ppub">1363-4615</issn>
<issn pub-type="epub">1461-7471</issn>
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<article-id pub-id-type="doi">10.1177/1363461515571626</article-id>
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<article-title>‘A Thing Full of Stories’: Traditional healers’ explanations of epilepsy and perspectives on collaboration with biomedical health care in Cape Town</article-title>
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<contrib-group>
<contrib contrib-type="author">
<name>
<surname>Keikelame</surname>
<given-names>Mpoe Johannah</given-names>
</name>
<aff id="A1">Faculty of Health Sciences, University of Cape Town</aff>
</contrib>
<contrib contrib-type="author">
<name>
<surname>Swartz</surname>
<given-names>Leslie</given-names>
</name>
<aff id="A2">Department of Psychology, Stellenbosch University</aff>
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<author-notes>
<corresp id="cor1">
<bold>Corresponding Author:</bold>
Mpoe Johannah Keikelame, Primary Health Care Directorate, Old Main Building, Groote Schuur Hospital, E47-25, Observatory, Cape Town, 7925, South Africa,
<email>johannah.keikelame@uct.ac.za</email>
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<pub-date pub-type="nihms-submitted">
<day>21</day>
<month>8</month>
<year>2015</year>
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<pub-date pub-type="epub">
<day>13</day>
<month>2</month>
<year>2015</year>
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<pub-date pub-type="ppub">
<month>10</month>
<year>2015</year>
</pub-date>
<pub-date pub-type="pmc-release">
<day>01</day>
<month>10</month>
<year>2016</year>
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<volume>52</volume>
<issue>5</issue>
<fpage>659</fpage>
<lpage>680</lpage>
<pmc-comment>elocation-id from pubmed: 10.1177/1363461515571626</pmc-comment>
<abstract>
<p id="P1">The experience of epilepsy is profoundly culturally mediated and the meanings attributed to the condition can have a great impact on its social course. This qualitative study used Kleinman’s Explanatory Model framework to explore traditional healers’ perspectives on epilepsy in an urban township in Cape Town, South Africa. The healers who participated in the study were Xhosa-speaking, had experience caring for patients with epilepsy, and had not received any training on epilepsy. Six individual in-depth interviews and one focus group with nine traditional healers were conducted using a semi-structured interview guide. Traditional healers identified several different names referring to epilepsy. They explained epilepsy as a thing inside the body which is recognized by the way it presents itself during an epileptic seizure. According to these healers, epilepsy is difficult to understand because it is not easily detectable. Their biomedical explanations of the cause of epilepsy included, among others, lack of immunizations, child asphyxia, heredity, traumatic birth injuries and dehydration. These healers believed that epilepsy could be caused by
<italic>amafufunyana</italic>
(evil spirits) and that biomedical doctors could not treat the supernatural causes of epilepsy. However, the healers believed that western medicines, as well as traditional medicines, could be effective in treating the epileptic seizures. Traditional healers were supportive of collaboration with western-trained practitioners and highlighted that the strategy must have formal agreements in view of protection of intellectual property, accountability and respect of their indigenous knowledge. The findings suggest a need for interventions that promote cultural literacy among mental health practitioners. Research is urgently needed to assess the impact of such collaborations between biomedical services and traditional healers on epilepsy treatment and care.</p>
</abstract>
<kwd-group>
<kwd>epilepsy</kwd>
<kwd>traditional healers</kwd>
<kwd>explanatory models</kwd>
<kwd>collaboration</kwd>
<kwd>South Africa</kwd>
</kwd-group>
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</front>
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