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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Patterns of Disclosure of HIV- Status to Infected Children in a Sub-Saharan African Setting</title><author><name sortKey="Vaz, Lara M E" sort="Vaz, Lara M E" uniqKey="Vaz L" first="Lara M. E." last="Vaz">Lara M. E. Vaz</name></author><author><name sortKey="Maman, Suzanne" sort="Maman, Suzanne" uniqKey="Maman S" first="Suzanne" last="Maman">Suzanne Maman</name></author><author><name sortKey="Eng, Eugenia" sort="Eng, Eugenia" uniqKey="Eng E" first="Eugenia" last="Eng">Eugenia Eng</name></author><author><name sortKey="Barbarin, Oscar A" sort="Barbarin, Oscar A" uniqKey="Barbarin O" first="Oscar A." last="Barbarin">Oscar A. Barbarin</name></author><author><name sortKey="Tshikandu, Tomi" sort="Tshikandu, Tomi" uniqKey="Tshikandu T" first="Tomi" last="Tshikandu">Tomi Tshikandu</name></author><author><name sortKey="Behets, Frieda" sort="Behets, Frieda" uniqKey="Behets F" first="Frieda" last="Behets">Frieda Behets</name></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">21317803</idno><idno type="pmc">3128187</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3128187</idno><idno type="RBID">PMC:3128187</idno><idno type="doi">10.1097/DBP.0b013e31820f7a47</idno><date when="2011">2011</date><idno type="wicri:Area/Pmc/Corpus">001C30</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">001C30</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Patterns of Disclosure of HIV- Status to Infected Children in a Sub-Saharan African Setting</title><author><name sortKey="Vaz, Lara M E" sort="Vaz, Lara M E" uniqKey="Vaz L" first="Lara M. E." last="Vaz">Lara M. E. Vaz</name></author><author><name sortKey="Maman, Suzanne" sort="Maman, Suzanne" uniqKey="Maman S" first="Suzanne" last="Maman">Suzanne Maman</name></author><author><name sortKey="Eng, Eugenia" sort="Eng, Eugenia" uniqKey="Eng E" first="Eugenia" last="Eng">Eugenia Eng</name></author><author><name sortKey="Barbarin, Oscar A" sort="Barbarin, Oscar A" uniqKey="Barbarin O" first="Oscar A." last="Barbarin">Oscar A. Barbarin</name></author><author><name sortKey="Tshikandu, Tomi" sort="Tshikandu, Tomi" uniqKey="Tshikandu T" first="Tomi" last="Tshikandu">Tomi Tshikandu</name></author><author><name sortKey="Behets, Frieda" sort="Behets, Frieda" uniqKey="Behets F" first="Frieda" last="Behets">Frieda Behets</name></author></analytic><series><title level="j">Journal of developmental and behavioral pediatrics : JDBP</title><idno type="ISSN">0196-206X</idno><idno type="eISSN">1536-7312</idno><imprint><date when="2011">2011</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><sec id="S1"><title>Objective</title><p id="P1">Adult caregivers provide children living with HIV with varying amounts and types of information about their health status that may affect their coping and health care behaviors. We aimed to describe patterns of information-sharing with children and thoughts around disclosure among caregivers in the Democratic Republic of the Congo.</p></sec><sec id="S2"><title>Methods</title><p id="P2">259 primary caregivers of children 5–17 years old in an HIV pediatric care and treatment program were screened; 8 adult caregivers (3%) had informed their child of the child’s HIV status. We conducted structured interviews with 201 caregivers whose children had not yet been told their HIV status.</p></sec><sec id="S3"><title>Results</title><p id="P3">Nearly 50% of caregivers provided no information to their child about their health; 15% had given partial information without mentioning HIV, and 33% provided information that deflected attention from HIV, whether deliberately so or otherwise. Almost all caregivers said that the child should be told their status some day, and three-fourths reported having ever thought about what might lead them to tell. However, nearly one-third of caregivers saw no benefits to informing the child of her/his HIV status. A majority of caregivers felt that they themselves were the best to eventually disclose to the child, but some wanted support from health care providers.</p></sec><sec id="S4"><title>Conclusion</title><p id="P4">HIV-infected children are given limited information about their health. Health care providers may serve as important sources of support to caregivers as they decide when and how to talk candidly with their children about their health.</p></sec></div></front></TEI><pmc article-type="research-article"><pmc-comment>The publisher of this article does not allow downloading of the full text in XML form.</pmc-comment>
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<front><journal-meta><journal-id journal-id-type="nlm-journal-id">8006933</journal-id><journal-id journal-id-type="pubmed-jr-id">4649</journal-id><journal-id journal-id-type="nlm-ta">J Dev Behav Pediatr</journal-id><journal-id journal-id-type="iso-abbrev">J Dev Behav Pediatr</journal-id><journal-title-group><journal-title>Journal of developmental and behavioral pediatrics : JDBP</journal-title></journal-title-group><issn pub-type="ppub">0196-206X</issn><issn pub-type="epub">1536-7312</issn></journal-meta><article-meta><article-id pub-id-type="pmid">21317803</article-id><article-id pub-id-type="pmc">3128187</article-id><article-id pub-id-type="doi">10.1097/DBP.0b013e31820f7a47</article-id><article-id pub-id-type="manuscript">NIHMS272493</article-id><article-categories><subj-group subj-group-type="heading"><subject>Article</subject></subj-group></article-categories><title-group><article-title>Patterns of Disclosure of HIV- Status to Infected Children in a Sub-Saharan African Setting</article-title></title-group><contrib-group><contrib contrib-type="author"><name><surname>Vaz</surname><given-names>Lara M. E.</given-names></name><degrees>PhD, SM</degrees><aff id="A1">Institute for Global Health, Vanderbilt University, Nashville TN</aff></contrib><contrib contrib-type="author"><name><surname>Maman</surname><given-names>Suzanne</given-names></name><degrees>PhD</degrees><aff id="A2">Department of Health Behavior and Health Education, Gillings School of Global Public Health, University of North Carolina, Chapel Hill, NC</aff></contrib><contrib contrib-type="author"><name><surname>Eng</surname><given-names>Eugenia</given-names></name><degrees>MPH, DrPH</degrees><aff id="A3">Department of Health Behavior and Health Education, Gillings School of Global Public Health, University of North Carolina, Chapel Hill, NC</aff></contrib><contrib contrib-type="author"><name><surname>Barbarin</surname><given-names>Oscar A.</given-names></name><degrees>PhD</degrees><aff id="A4">Department of Psychology, Tulane University, New Orleans, LA</aff></contrib><contrib contrib-type="author"><name><surname>Tshikandu</surname><given-names>Tomi</given-names></name><degrees>MD</degrees><aff id="A5">School of Public Health, University of Kinshasa, Kinshasa, Democratic Republic of the Congo</aff></contrib><contrib contrib-type="author"><name><surname>Behets</surname><given-names>Frieda</given-names></name><degrees>PhD, MPH</degrees><aff id="A6">Department of Epidemiology, Gillings School of Global Public Health, University of North Carolina, Chapel Hill, NC</aff></contrib></contrib-group><author-notes><corresp id="FN1">Correspondence to: Lara M. E. Vaz, PhD, SM, Institute for Global Health, Vanderbilt University, 2525 West End Avenue, Suite 750, Nashville, TN 37203-1738, <email>lara.vaz@vanderbilt.edu</email></corresp></author-notes><pub-date pub-type="nihms-submitted"><day>22</day><month>2</month><year>2011</year></pub-date><pub-date pub-type="ppub"><month>5</month><year>2011</year></pub-date><pub-date pub-type="pmc-release"><day>11</day><month>8</month><year>2012</year></pub-date><volume>32</volume><issue>4</issue><fpage>307</fpage><lpage>315</lpage><pmc-comment>elocation-id from pubmed: 10.1097/DBP.0b013e31820f7a47</pmc-comment>
<abstract><sec id="S1"><title>Objective</title><p id="P1">Adult caregivers provide children living with HIV with varying amounts and types of information about their health status that may affect their coping and health care behaviors. We aimed to describe patterns of information-sharing with children and thoughts around disclosure among caregivers in the Democratic Republic of the Congo.</p></sec><sec id="S2"><title>Methods</title><p id="P2">259 primary caregivers of children 5–17 years old in an HIV pediatric care and treatment program were screened; 8 adult caregivers (3%) had informed their child of the child’s HIV status. We conducted structured interviews with 201 caregivers whose children had not yet been told their HIV status.</p></sec><sec id="S3"><title>Results</title><p id="P3">Nearly 50% of caregivers provided no information to their child about their health; 15% had given partial information without mentioning HIV, and 33% provided information that deflected attention from HIV, whether deliberately so or otherwise. Almost all caregivers said that the child should be told their status some day, and three-fourths reported having ever thought about what might lead them to tell. However, nearly one-third of caregivers saw no benefits to informing the child of her/his HIV status. A majority of caregivers felt that they themselves were the best to eventually disclose to the child, but some wanted support from health care providers.</p></sec><sec id="S4"><title>Conclusion</title><p id="P4">HIV-infected children are given limited information about their health. Health care providers may serve as important sources of support to caregivers as they decide when and how to talk candidly with their children about their health.</p></sec></abstract><kwd-group><kwd>children</kwd><kwd>HIV/AIDS</kwd><kwd>disclosure</kwd></kwd-group></article-meta></front></pmc></record>Pour manipuler ce document sous Unix (Dilib)
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